When I started getting spots and bruises I made jokes about having ripe banana syndrome. This however quickly turned into a serious issue causing me to have a five day hospital stay. The issues are still not resolved, I feel awful I have pain, dizziness, mental disconnectedness, heaviness, swelling, the shakes, fatigue, and a ringing in my ears. My skin has turned into greasy shoe leather filled with acne and it feels hot and burning to me but is extremely cool to the touch. To make matters worse they are unsure of what caused this illness or even what to call it. Right now they are sticking with chronic ITP and costochondritis.
So what am I supposed to do about all of these annoying troubles. First I had platelets, then IGIV, and then steroids. All of these things have not worked. In fact the steroids have made most of the above mentioned issues worse. So now my options are limited to spleen removal and chemotherapy. This is a big step into the unknown and the big question on everyone's mind is, Are either of these prospects going help me? I sincerely hope so because i simply can not continue as I am. As a self employed home schooling mother of four who also takes care of a disabled husband I just cannot afford to be incapacitated for any reason. I wish there was a way to make my family ok through this. I do not know what else to do as it is next week we will be completely out of money. This means no gas to even get to my treatments. I have set up a fundraiser but that actually requires the word to go out and I simply don't know that many people. To be honest I am not sure why I keep making these blog posts other than writing is the only thing that has ever kept me remotely sane so I will keep writing even if it is just for me. I have to go for my first chemotherapy treatment tomorrow morning please keep me in your thoughts.
https://www.giveforward.com/fundraiser/dff8/sally-a-wolf-oncologist-fund
No comments:
Post a Comment