Today was another long day of sitting around watching little drops of fluid fill my veins. Now don't get me wrong I love having the time to read, but after several hours the time seems to stand still. The treatment has to be started slowly to insure I do not have a reaction to the medication. The problem has been they set the IV to auto and forget to increase it. On top of it all my poor husband has to sit painfully in an uncomfortable chair watching me munch on gluten filled snacks he can't eat while I mindlessly turn pages and there is nothing I can do for him. Today he went a little crazy and started making invein vein jokes then quoting lines from "The Princess Bride" and "Frightners" I could not help but laugh which most of the time is a good thing unless someone is poking you with a needle trying to find a vein. I am home now I have to wait a whole week for another dose the problem with that is I have terrible withdrawal from the steroids the give me before the Rituxan. It makes me so week I can barely move. To top it all off I have a burning pain between my shoulder blades which is aggravated by sitting or lying down. My face has so much acne I could play Pizza The Hut from "Spaceballs" I know I was not a fashion statement before but now I get weird looks. Not counting the older man checking me out at the gas station this evening. I think my husband would have had some choice words for him if he did not hurt so bad he could not get out of the car.
In closing I would like to once again thank those of you who have donated their hard earned money to our cause. I know how much of a sacrifice it must be. Please know it is greatly appreciated. It is going to be a long road until I am well enough to once again provide for my family and we are humbled by your generosity. Link to more information. Even if you do not have the monetary means, please just share the link and keep me in your prayers hopefully the Rituxan works and I do not have to resort to more drastic measures with a higher failure rate.
https://www.giveforward.com/fundraiser/dff8/sally-a-wolf-oncologist-fund
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